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Jason Bobe is Associate Professor, Director of the Sharing Lab at the Icahn Institute for Genomics and Multiscale Biology, Director of Democratized Health Innovation at the Institute for Next Generation Healthcare, Icahn School of Medicine at Mount Sinai.
He attempts to produce research efforts that people actually want to join. He works on prototyping collaborative and participatory models of biomedical research and citizen science. With a focus on (a) greatly expanding the rates of participation in organized health research, (b) broadening the types of contributions participants in research are able to make, (c) promoting discovery & engagement through participant-centered research design and “equal access” data sharing practices, (d) the creation of well-consented public resources via the “open consent” framework, (e) building research networks and communities of practice around emerging technologies.
At Mount Sinai, he is a leader of the Resilience Project, an effort to learn why some people are better able to overcome challenges to their health.
Reviewer Keywordsresilience genomics positive outliers digital health participatory research governance diy science data sharing design
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